Megatron v MMR

Since the day that Megan was born she has been that child. If there was a bug going around, not only would she get it, but she would get it ten times worse. If there was an accident to be had, despite a thousand other children doing the exact same activity, it would be Megan who had it. Out of all four of our children, regardless of the situation or the circumstances, if any of them was ever going to cause us worry….it would be Megan.

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It became a bit of a running joke at first. Every time we landed back in Ward 8 in our local children’s hospital, the nurses would shake their heads and laugh, “Here she is again!” they’d say, affectionately tickling her under the chin, while she growled at them.

“Been in the wars?”, the health visitor would ask, narrowing her eyes as she took in another bump, another bruise, another scar, scribbling furiously into her notebook.

“Keeping me in business?”, the doctor would tease, as he wrote out a prescription for the tenth time in as many weeks, reassuring us, while she screamed blue murder, “She’ll grow out of it don’t worry!”.

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But she didn’t grow out of it, and during those first twelve months we spent our lives in and out of the hospital, seeing specialists and consultants, all of them scratching their heads and declaring her a medical mystery. When she split her head open just after her first birthday, when her lips went blue and she was blue lighted into resuscitation, when she bumped, banged or scraped her knees and screamed for every hour of every day, “Only Megatron!!”, we would say.

At fifteen months old we received an appointment for Megan’s MMR and, not surprisingly, with her being continuously poorly, it was postponed until she reached eighteen months and was finally well enough to have it. I had no concerns about it at all, having seen Lewis and Eva both sail through it with no bother, and as I signed the consent form, and the nurse reassured me that it was extremely rare to have any adverse reactions, I genuinely didn’t give it a second thought.

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And initially she had seemed well and walked out of the doctors surgery, chattering away, bright as a button, yet by the time we arrived home she was burning up and listless. I still wasn’t overly concerned and had merely dished out the Calpol, the cure of all cures, and allowed her to “sleep it off”. When she woke from her nap and went to stand up, she had collapsed onto the floor, yet I simply put it down to her legs being sore as the injection had been administered into her very substantial thighs, had given them a “Mum rub”, a bit more Calpol and allowed her to lie on the couch watching Cbeebies.

Over the next couple of hours she went significantly down hill, completely losing the ability to stand, collapsing limply onto the floor and in-able to speak in the way she had just hours earlier. She had been whisked straight into hospital, examined by a paediatrician and admitted onto the Childrens Ward where the consultant told us that he had never seen a reaction like it in his thirty years of practice, and had apologised profusely that their expertise now lay solely in the hands of Google.

Sitting there, watching our lively, talkative, whirlwind of a toddler, completely limp and silent on a hospital bed, was one of the most terrifying moments of our lives. We were told that she had experienced a very rare, adverse reaction to the MMR which had affected her brain and effectively paralysed her. The scariest part was that nobody could tell us how long it would take for the effects to wear off or, even more concerning, if they ever would.

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And I had sat there, on that all too familiar Ward 8, holding her little hand in mine, just as I had done countless times already during her short life, and willed her to get better. Watching her chest rise and fall, wired up to machines with the rush of nurses coming in and out, checking her stats and shooting us sympathetic glances, I had prayed to a God that I didn’t believe in, that she would get better.

And the thing about Megan, if you hadn’t already realised by now, is that when it comes to the crunch, she will never go down without a fight. Mentally, and physically, she will kick, scream and scramble her way back to health and, after the most worrying few days, she had done exactly that. She didn’t earn the nickname Megatron without good reason, and when she had jumped out of bed, ran up and down the corridors screaming and shouting for food, we knew that she would be absolutely fine. And so we had been discharged, with the understanding that when it was time for her booster we would re-assess the situation and take it from there.

And for two long years I have barely given it a second thought.

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So today when I spotted a familiar yellow slip in the post, I instantly felt a sense of dread. As a Mummy who is very much pro-vaccination, faced with the prospect of putting her through an ordeal like that again, even worse as a three and a half year old, makes for a very difficult decision. On the one hand I am reassured that she did make a full recovery, and as far as we know it left her with no long term effects (although if I’m honest, on the days when she screams for eight hours solid I do wonder…), and yet on the other hand, is it a risk that we can consider taking? And would I ever forgive myself either way?

There is so much information these days about the risks of not immunising a child, but very little information about the risks of immunising, particularly following an adverse reaction. Having spent the afternoon scouring Google for information it became apparent that there are no guarantees with any immunisations and yet choosing not to have it may, or may not, put my child in danger of being susceptible to illnesses that could actually be life threatening.

With her booster scheduled for next week I have spoken with the doctors surgery and requested a consultation to discuss this further, ideally with a paediatrician or a specialist. If it comes down to us paying privately for individual injections, or testing her blood for existing immunity, then so be it. Because when it comes to your children you’d do just about anything to keep them safe, wouldn’t you? And even with the odds being low, when it comes to my child, and particularly when it comes to my Megatron, it simply isn’t worth the risk.

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I would love to hear from anyone whose child had an adverse reaction to the MMR, or any medical professionals who have advice on this subject, either by leaving a comment below or messaging me privately at fivelittledoves@outlook.com

Thank you.

ethannevelyn

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125 Comments

    1. Thank you, you’re right, if it was a case of having to have the booster or her be poorly from one of the illnesses, it’s better to have the booster I suppose. I’m hoping the doctors can advise us better. xx

  1. Oh bless, it sounds like she’s been through the wars. I would definitely be the same though, after such an awful reaction I would also be concerned it could happen again, hopefully they can do some tests and come up with a solution which won’t bring the same reaction. Fingers crossed #sharingthebloglove
    Louise recently posted…Buying Baby Boys ClothesMy Profile

    1. Fingers crossed, being a parent is such hard work. It’s tough knowing what to do for the best. xx

  2. Oh gosh this is a dilemma for you. I don’t have any experience of adverse reactions to vaccinations to share but I think I would proceed in exactly the same way as you are. You need a detailed assessment of her particular case and it seems to make sense to find out if she is already immune. She is such a little sweety – my youngest daughter is our accident prone child. She broke her arm at 13 months, her ankle at 10 years and I have had countless other visits to A&E with her – more than with my other 2 put together!!
    Sharon Parry recently posted…5 tips for preparing a UCAS personal statement – what every parent needs to knowMy Profile

    1. I think there’s one in each family isn’t there! She wouldn’t be Megatron if she was any other way, but gosh she’s a worry!! xx

  3. Oh I totally get your fear – I put off the MMR for so long with my little boy Gabe as he was constantly unwell when he was a baby. Actually Gabe’s gastro is one of the doctors that did loads of research on the MMR *you know those papers* and he was keen for him to have it still. It is so tricky – but then I was more fearful of actual measles and if she doesn’t cope well anyway… So hard isn’t it. Are you at Blogfest? We can have a natter then if you want xx

    1. Yes I’m at Blogfest!! That will be lovely to chat about it. I know some children have full immunity after the MMR and don’t need the booster, they can do simple blood tests to check it but not sure if they will without a fight. Will see what Monday brings, thank you. xx

  4. oh gosh how terrifying! Luckily all 3 of mine have gone without issue through their injections, but I would be scared to go again if mine had a reaction. As a parent I think our instincts kick in and we do whatever we can to keep them safe! Wishing you luck xo #sharingthebloglove #stayclassymama

    1. Definitely, the other three were fine. Only Megan, always!! I’m hoping she will be immune, just need to convince the doctors to check her immunity now. Fingers crossed. xx

  5. A sad post in most ways (except that she recovers each time) but oh what wonderful photos! What an amazing little girl. I really don’t envy your predicament, but you will go with your gut feeling and that will be the right choice. I hope some medical professionals respond to this, or others who have been in the same situation. Good luck. Alison x #brilliantblogposts
    Alison (MadHouseMum) recently posted…Life is hard enoughMy Profile

    1. Thank you, she is such an amazing little girl but a real worry!! I hope that we are given good advice and can make an informed decision. Parenting is so hard! xx

  6. Oh dear – I can’t imagine how scary that must have been for you. It’s hard when you want to protect your child by immunising them against devastating illnesses, but you always want to protect them from any potential side effects.Your girl seems like a fighter, though! #stayclassymama
    Squirmy Popple recently posted…Vogue 73 questions non-vlogMy Profile

    1. Definitely, I couldn’t forgive myself either way! I’m hoping blood tests will show she is already immune, that would make the decision very easy. Fingers crossed. xx

  7. Poor baby! I feel for you momma! My five year old is allergic to most antibiotics. When he gets sick I just pray and pray he wont antibiotics. Hopeful you will get the answers you need in order to make the right choice for your family! xoxo

    1. Thank you. It’s so hard isn’t it? We just want to do what’s right our children but sometimes it isn’t that easy! xx

  8. I’m so glad your Megatron made a full recovery, how scary that must have been! I am pro-vaccination- I’m one of the people who benefits from herd immunity due to some vaccinations “not working” on me, leaving my body without immunity despite repeated attempts to vaccinate. I do think speaking to a specialist is priority, at least for your own peace of mind that everyone is aware of her past reactions so they can be prepared for another one.
    Heather Keet recently posted…It’s too much pumpkin…My Profile

    1. Definitely, I’m going to ask to speak to an immunologist and take it from there. Such a worry though! xx

    2. Yes definitely, I’m hoping that they can prove she already has full immunity and another jab isn’t necessary. Fingers crossed. xx

  9. Goodness what a scary time that must have been. I can understand why it’s causing you so much worry now. I sadly can’t give any advice but getting the consultation sounds like exactly what I would try to do. After what happened previously they should be giving you all the support they can to minimise the changes of a repeat.

    I hope you get all the info you need to make the right call. Please share an update post on what happens so we know she’s okay x #CoolMumClub
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  10. Oh Laura, this must be such a difficult decision for you. I know I’m hugely pro-vaccinations, but I have to admit that I think I’d think twice about putting her through it again. On the one hand you’ve got the reassurance that she did recover last time with no issues, but it’s such a big thing for a parent to consider. I really hope that you can get some specialist advice, and it’s good to see that there are other people who’ve gone through similar experiences commenting. Thanks so much for joining us again at #SharingtheBlogLove
    Katy – Hot Pink Wellingtons recently posted…#SharingtheBlogLove #19My Profile

    1. It’s difficult isn’t it. At three and a half a reaction like that would be terrifying for her to go through, and so traumatic. I’m hoping they will agree to test her for immunity (although the NHS is reluctant to do anything they don’t have to!) and if they won’t we will pay private. I can’t just take the risk I don’t think! xx

  11. That is great she made a full recovery. I’m sorry you have had to go through all of this, but I have been where you are. There is always that one child lol. I am happy to say though that my one child that was prone to bumps and sickness is much older now and grew out of it! #momsterslink
    Bridget recently posted…Gettysburg, Where History and Modern Life CollideMy Profile

    1. Haha yes, that one child has prematurely aged me!! I’m glad there is hope of her growing out of it, fingers crossed! xx

  12. Oh no. This is just one of those situations when you look towards the health proffessionals and will them to tell you what to do (which of course, they can’t). best of luck honey, hope the consultation sheds some light x Thanks for linking up to #coolmumclub
    MMT recently posted…#coolmumclub Linky week 43My Profile

    1. Thank you. It’s very hard when there can be no reassurances that it WON’T happen again. Although they will probably say the odds are unlikely, when it comes to Megan anything is possible!!! xx

  13. What a scary situation to go through with a child. Thankfully I have not experienced any adverse reactions with my children being vaccinated. But, it is certainly something to be vigilant about.

    1. It really was terrifying, thankfully she is fine now and hopefully we will be able to have the booster without any side effects. xx

  14. When I was four I had a reaction to a vacc in my thigh and now it is a giant dimple looking thing.
    Very sexy. So I was beyond relieved when all of the kids made it through them unscathed.

    #momsterlink

    1. Oh gosh, that must have been bad to scar! It’s always scary with injections but usually nothing more than a little Calpol can fix! xx

  15. That is so scary!! Thank goodness she’s recovered from that. My children have allergies and we tended to wait till the Doctor has given the all clear. but I can’t offer any advice. This is such a hard situation and it’s harder when doctors are unable to provide clear answers too. #momsterlink
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    1. Thanks lovely, really hoping the doctors can reassure us, I’m very reluctant just to get the booster without proper tests being done or the jab being given in a controlled environment. xx

  16. So scary lovely, I am always a bit wary about vaccinations, my girls do have them but I am not sure that I am entirely comfortable with them and I cant even explain why. Good luck lovely #momsterslink

    1. I feel the same. You don’t really know what you are giving them or putting into their bodies do you? I do it because I know it helps to protect them from other illnesses, but I don’t feel comfortable with it either. xx

  17. What a fighter you have! But what a traumatic experience to have gone through. I have no experience to share with this but send you warm wishes.

  18. That is so scary! I would be horrified to ever get her another vaccination! So glad she was ok and I will keep my fingers crossed that they will know what is best to do. Thanks again for hostessing with me. #momsterslink

  19. Hi. Pediatrician here. Please get that vaccine – the measles vaccine has prevented about 17 million deaths since 2000. More than 300 kids die every day worldwide. Reactions are incredibly rare. They are also much more likely with the first vaccine than the second, because with the first vaccine you actually catch a weak form of the disease. When you get the booster you are already immune, so your body’s immune system just kills it off and boosts your immunity. Diseases are much scarier than vaccines.

    1. Thank you, that’s really good advice. I am very much pro-vaccination and all of my children are fully vaccinated, its just a worry incase the same thing happens again with the booster. That’s good to know that the reaction is less likely with the booster though, thank you so much. xx

  20. I am definitely on the pro-vaccination side HOWEVER I never allow my children to have more than three shots at once and there are certain vaccinatons i do not belivee are necessary and so I waive them…For your megatran i would absolutely consult a FEW doctors and specialists before going anywhere near and MMR needle and if any of them advise against i think I would strongly hesitate to vaccinate her for quite some time…I don’t know how you kept your wits in such a terrifying situation. you are a stronger mama than me! #MomsterLink

    1. Thank you, it’s such a lot of vaccinations they give in one go isn’t it? For a baby of that age it’s terrifying really, no wonder there are adverse reactions. I’m hopeful that she has full immunity and there will be no need for the booster, we just need a good doctor to agree to test her! xx

  21. As someone who works in the pharma industry this is my first time hearing of anMMR Advrse Reaction. I am truly intrigued and praying everything goes smoothly this time round

    1. That’s exactly what the specialists said, they’d never seen anything like it in their whole career. As scary as it was, I have to smile because really, this could only ever happen to Megatron!! xx

    1. Yes I completely agree! It’s scary that there is no way of knowing how any child will react to their jabs but reassuring that the risks are really very low. I’ve never heard of another reaction like this, nor had the consultant! xx

  22. Oh that must have been terrifying, but I’m glad she recovered. I’m sure it’s going to be tough to decide what to do about the booster, but hopefully there may be some less risky alternatives like having individual vaccinations instead, as you say. I hope that whatever you decide to do, it’s less traumatic than what you’ve already been through.

    Your photos are always amazing by the way – and Megatron is just gorgeous! #momsterslink
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    1. Ahh thank you, she’s a real character!! I’m hopeful that they will test her for immunity and the decision will be made for us. Fingers crossed! xx

  23. Gosh, I didn’t know you could have reactions to MMR! I thought the negative was just the side effects later on, that are irreversible. There’s a great deal of controversy about all immunisations and I’m siding more towards not having them now….I’ve just read too many worrying accounts. #PixandMixFridays
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    1. It’s so worrying isn’t it? We were absolutely terrified about Harry having his the year after Megan, but he was absolutely fine, as most children are. I think when you’ve witnessed a reaction like that it makes you think very differently about them but at the same time, you have to weigh up the risks of not vaccinating too. Very difficult decision! xx

  24. I’m so relieved she is ok! I got worried for a minute then!
    My husband hasn’t had any injections due to an allergic reaction to one of them but having spoken to our GP about concerns Ben would be the same apparently they’re made differently than 30 years ago.
    You’ve done the right thing by asking for a consultation before hand and looking at other options to make it easier for her.
    Keep us posted!
    #momsterslink

    1. Thank you, it’s hard making the right decision but there’s no way we are just going to go along with the booster without thorough professional input. Being a parent is hard! xx

  25. Awww what a cutey your Megatron is. So sorry she has to experience that! I’ve been lucky with my kids and vaccines with nothing out of the ordinary, and it just seems like there must be a better way for your little one! Sending positive vibes. #momsterslink

  26. I still can’t believe this happened to her, I have never come across it before. I really hope that someone will listen to you and help you to make the right decision. To guide you through it so that the outcome means that Megan is protected from it happening again. I am pro-vaccination, but this would scare me too much I think. x #picknmix
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    1. Thanks lovely. It’s so rare, and really it could only ever happen to Megatron, but it was so scary and the thought of it happening again is such a worry. Fingers crossed the GP will reassure us on Monday that everything will be done to make sure she is okay this time, I swear this child will be the death of me! xx

  27. Hopefully they do the blood test and find she is already immune to save you all the stress and risk, but otherwise personally if it was me I would still get it done. Really a hard choice though I know, I hope the doctors can give you a definite option and help. It must have been so scary for all of you x

    Thanks for linking up to #PicknMix

    Stevie x
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    1. I agree, I couldn’t live with myself if we didn’t have the booster and she became unwell, also there are other children to consider not just in our family but those she has contact with. I’m hoping it proves that she has full immunity, that would take the decision out of our hands and make it far easier! xx

    1. Its extremely rare, and it really could only happen to our Megatron, but with no reassurance that it wouldn’t happen again, it does leave us feeling very anxious! xx

  28. How unbelievably frightening! I hope you can find some answers, and make a well-informed decision. I honestly have no idea what I would do in this situation. I’m so glad to hear your little Megatron (what a great nickname!) got through this scare okay. I wish you all the best and I look forward to hearing what you choose (and how it goes!)
    ~Jess
    #MomstersLink
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    1. Thank you so much, I will definitely update when we have spoke with a paediatrician, or ideally an immunologist! xx

  29. Good heavens, Laura. This is quite a quandary, but I really appreciate that you made the comment that you are pro-vaccination. In the US, there have been quite a few parents discussed in the media who refused to vaccinate their children and subsequently exposed schools to illnesses that should not be coming around in this age. The fact that you ARE pro-vaccination but are still having this dilemma puts this in a very different light for me. I hope that you can get some clarity so you can feel confident about the choice you make. God bless. #momsterslink
    Carolina Twin Mom / Mary Peterson recently posted…Andy Cat for PresidentMy Profile

    1. I completely agree, it’s the parents who refuse to vaccinate their children which can then cause an epidemic, that doesn’t sit well with me at all. I think we will ask for Megan to have her blood checked for immunity as I know some children can have full immunity after just one MMR without the need for the booster. If that’s the case the dilemma will be solved, if not then I think we will have to ask for more medical input. Thank you for your comment, I will update when we have heard more. xxx

  30. Oh my god, that must have such a terrifying thing to go through. Sounds like you are doing everything you can to minimise the risks this time round whichever way you go. Best of luck, I will keep everything crossed for you and to your not so little anymore Megatron x
    #Momsterslink
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    1. Thank you, I hope that we can find a solution that protects her from the side effects AND the illnesses too. xx

  31. Goodness me, so scary. You are right-a lot of info out there on the risks of not immunising but not enough on doing it. I want all the facts, it’s our right. Thanks for this x

    1. Definitely, it’s all well and good telling us that we SHOULD do it, but what happens when the risks for and against are equal? I’m hoping Megan will be proven to have full immunity and we don’t need the booster, that would make it a very easy decision! Thank you for hosting. xxx

  32. What a scary ordeal! I’m so glad she recovered and you’ve gone forward with research and making sure you do what’s best for her <3 wish you all the best!

    PS My youngest is a megatron as well! Full of life and power <3

  33. Im so sorry you and your little one are going through this. She is a beauty! Thank you for such a heartfelt post! #momsterlink

  34. Thank God your little girl has recovered from every adversity. As a father, I can empathize with wanting to do what is right for your child but not being reassured that medical science knows it all. Wishing you the best, I look forward to hearing good news.

    1. Thank you, you’re right, we just have to trust that the medical professionals know what they are doing and I’m sure the chances of it happening again are very low. I will update when we are more clued up! xx

    1. Oh gosh, and did she have her booster afterwards? My other three have all been fine, we had Harry immunised a year after Megan as we were assured the chances of it happening again were extremely low. I’m hoping she will be fine with the booster, it’s a worry isn’t it! xx

    1. I hope so. And it’s fab isn’t it! She is SUCH a Megatron, anyone who meets her completely understands where it has come from. She’s a brute!! xx

  35. So glad she is better and how difficult to deal with a wonderfully written post as usual would love to see a update on this Thanks for linking to the #THAT FRIDAY LINKY come back next week please

  36. Ok so I started reading this and totally sympithased with the hospital stays , this was us with my eldest when he was 3 months he got his first urine infection.As he burnt up and started shaking I had never been so scared in all my lofe, he went on to have another 2 in very short spaces of time. The bumps and bruises this is my Max as well, he bruises like a peach. As for the MMR i was uterlly shocked at the reaction your little one had. Im very anti MMR (I dont really want a debate anyone who is pro , this is just my opinioun) we didnt vacinate against MMR, Ive heard so many horror stories. Your right there is so much info about why we should vaccinate (conveiently so) but barely any about adverse side effects and reasons not to vacinate. Every child is different and not everyone reacts to vaccines in the same way, I really hate this one size fots all approach the nhs seems to take with our childrens health. Anyway enough rambling from me, Im sure you with conult with the pediatrican and make an informed descision, you know best you are her mother 🙂 #momsterlink

    1. Thank you, it’s very hard with a poorly child isn’t it. I have heard a lot of arguments for and against the MMR and I understand why parents do what they feel is best for their child. At the time I was led to believe that the MMR was completely safe, now with hindsight I am aware of the risks and that isn’t something I am willing to chance again. I’m hoping the doctor will agree to check Megan for immunity as I know many children have no need for the booster. Fingers crossed. xx

  37. OMG what an awful ordeal! Coupled with the fact that even the doctors didn’t know what was going on, I really feel for you. I suspect you won’t get a definite answer and will still need to make a risk based decision. I think I would go with individual injections unless they can assure you that the combined booster is somehow different from the original injection. I hope it works out xx #momsterslink
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    1. It was awful, especially when they were all googling!! Doesn’t really give you much faith does it!! I hope that we get some answers before the booster. xx

  38. I don’t blame you for being cautious about the booster, I can’t begin to imagine how horrendous the whole ordeal must have been for you. I hope you get the appointments you need and are able to safely protect your gorgeous little girl again MMR. Absolutely love some of her expressions, she’s a real little character #MMBC x
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    1. Thank you, still waiting to speak to the doctor about it today, I’m getting really anxious! xx

    1. Thank you. Not having answers is the most worrying part isn’t it? I’m hoping we get the right advice soon. xx

  39. Poor Megatron. I am so glad she has recovered from this. This is very interesting to read. My kids just had a bit of high temperature for the evening and that was it. I would love to hear more about your decision whether to do individuals immunisations or not and how it went and all. I hope it doesn’t play up on Megatron again. Big hugs. XX

    Thank you so much for linking up with us on #FabFridayPost

    1. It’s a worry isn’t it? She has been referred to the hospital for blood tests to check her immunity. Hopefully we should have an appointment through soon and it will prove she is already fully immune. I do hope so, it would make the decision far easier! xx

  40. My middle child was in and out of hospital his first two years, even something like tonsilitis he would need IV antibiotics, be on a drip. They were testing his immune system when his MMR came through so he couldn’t have it and didn’t have it till he was almost 3 in the end and luckily he was fine, he caught a mild dose of everything in it but didn’t end up in the hospital. Ava reacts to injections and wouldn’t walk for a couple of days after her MMR coming out in blisters on the vaccination site. I would definitely discuss it with the paedetrician and maybe like you said consider the separate injections, its so hard when you are pro vaccination and this happens, sending hugs,

    Thanks for linking to #PickNMix
    Eilidh x
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    1. This sounds JUST like Megan! She’s three and has had tonsillitis 25 times, she’s been in hospital more times than I can remember with it but still they wont take her tonsils out unless they prove to be obstructing her breathing. I’ve spoken to the doctor and she is having blood tests to check her immunity for the MMR, if it proves she is fully immune she won’t need the booster anyway. Fingers crossed, children are a huge worry aren’t they? xx

  41. Oh I’ve not heard of a reaction like that before, it must have been so worrying at the time. Am glad to hear she made a full recovery. I can understand how you must feel about her having the booster. Let’s hope the results come back that she has full immunity.

    #SharingtheBlogLove

    1. Thank you, it’s been such a worry! She’s been referred to a paediatrician to have blood tests to check her immunity. If it proves she has full immunity the decision is much easier! Fingers crossed! xx

    1. Thank you. We are waiting on her blood results to see if she has full immunity, it would make our decision much easier! xx

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